Individual 1, who at that point had become the President of the United States
May 17, 2019
Anonymisation and research Human data are among the richest and most complex available to researchers. With such data comes great responsibility, however, not least that of protecting the safety and privacy of subjects. Recent changes in the legal landscape, most prominently the General Data Protection Regulation, have enshrined in law the obligation to safeguard …
A security plan for the US National Institutes of Health
March 13, 2017
I’ve been supporting research colleagues who are applying for permissions to access to data held by the US National Institutes of Health (NIH). This is data collected from patients, and relating to a serious medical condition, and hence considered very sensitive, even though anonymised at source. To obtain access permissions, we have created a plan …